Friday, February 26, 2010

These last couple of weeks have been rather stressful but now we are only a few days away from the beginning of World Wide RSD Angel Month. For the whole month of March RSD/CRPS Doesn't Own Me is hosting a month filled with celebrating our Battle against RSD. We are looking for testimonies and personal stories straight from RSD Angels themselves.
We hope to collect as many as possible and to have them on our website to spread Awareness about RSD/CRPS. It will be the largest collection of RSD Angel Stories ever!
RSD/CRPS Doesn't Own Me has been growing in leaps and bounds lately. So many people are learning about RSD and why we struggle each day to stay positive and live our lives.
Also our store is growing as well. We have almost tripled our products within the last 3 months.
Check out RSD/CRPS Doesn't Own Me's store at www.zazzle.com/kissdatfisha/gifts all of the proceeds go to Continued Awareness, and expansion of Awareness about RSD/CRPS. We are fighting this battle every day and we are working hard to win this war against RSD/CRPS. We will have a cure!

Sunday, December 6, 2009


So We had a Formal Dance at Church this past Friday and all of my gal pals went as each others date. I went and got my hair done early in the day and then all of us girls....well me Tara and Darc went and got Tara an outfit for the dance then got home late and got ready fast then went picked up our friend Amy and went to eat @ Panera Bread and we had a blast!
We then got to the Dance a little late but had a blast and I got a little of dancing in before having to sit the rest of the nite in pain. We sat around and talked and just had a blast I took a video of all the craziness and its funny!
http://www.youtube.com/watch?v=Iisdhyu0mCo
We had an awesome time and then after we tired of the dance we went back to Darc's and we watched "Sister's Keeper."
Then on Saturday me and my boyfriend Joey went with his aunt and uncle to a Nativity. It was awesome! But now because I was out in the cold my RSD leg hates me. But yea it was a lot of fun! I loved it!
Anyway I have updated the RSD/CRPS Doesn't Own Me Website and its awesome!!!!
You should check it out!
www.rsdcrpsdoesntownme.com
Pictures:
Top- Is Me!
Middle- Amy and Me
Bottom-Joey and Me

Wednesday, November 18, 2009

So How Does Everyone like my new Layout? I had a blast putting it together....it needed to be done. I went to the Doctor again today and I am downgraded to a bad case of Bronchitis. Which is better then what we thought it was. They gave me a breathing treatment, a shot of steroids, some more antibiotics, and another inhaler.
My RSD has been the last thing on my mind lately because I have been soooo sick. Things have been ok as far as I can tell. I am going back to Cleveland Clinic to get a second opinion on my RSD. I am going Dec.17th. Hopefully my mom can come with me cause I hate going to that kinda thing without her.
My birthday is this upcoming Tuesday and I am going to be the BIG 22! I am excited yet nervous at the same time. I don't know what is gonna happen if my friends have anything planned... I don't really care either way. I am just tired and need to sleep.

Friday, October 2, 2009

New Meds.

So this monday I had a appointment with my pain management doctor, Dr. Deshpande, and it was a big appointment.
We talked about my pain and how bad it really was. He decided to put me on a new pain medicine Embeda, which is pretty much time released Morphine. Then we decided for my breakthrough pain and/or flare ups that I should take my Lortab (also known as Vicodin.)Also we talked about how I haven't been able to sleep so he also put me on Lunesta.So as of Now I am taking Lunesta 3mg @ night, Lorab 10/500mg as needed, and Embeda 20-0.8mg 2xday. I hate having to take so much medicine but I got to take them so that I can function.
I need to get to my general practitioner soon because there are some other things wrong with my body that might be a side effect of the amount of meds I have taken the last 2 years.
Also I am seeing if my pain doctor will approve me getting a scooter or a wheelchair because it is hard for me to get around without extra help.
My pain has spread to up to my left side. So my whole left leg is also taken by the RSD pain. It is frustrating but I am trying to live the best I can.
I started a new fan club called RSD/CRPS Doesn't Own Me on Facebook
> we have over 200 fans who have or know someone who has RSD. I am trying to spread joy and happiness and help all of us who have chronic pain get through this with a smile.

Anyway I am off to eat lunch.

HUGS!

Tuesday, September 15, 2009

Short Update

I haven't really been writing lately. I been rather busy and trying to live my life. I have surgery on Thursday. I am nervous but I know everything will go well.
Anyway just wanted to pop on here and update a bit.

Monday, July 27, 2009

Late Update

I haven't updated in a while. I have been really busy lately. I still haven't found out when I am gonna get surgery. I have been real busy lately. I started playing d20 Modern with a group of my friends this past week and I am really enjoying it. I am planning on going to the zoo with my friend Gordon on Wednesday with his church group. My big sissy Flora's roomie Leo came through town this weekend, and he and his friend Rich went out to dinner with me. We had a lot of fun just hanging and talking. I love my friends, I am glad that people aren't scared away by the lack of things I am able to do and are willing to work around my pain.
The last few weeks have been rough. I have/had the stomach/24 hour fluish type thing on and off. I have been on T180 a little less lately but it is still my main form of entertainment. I got shortlisted an got a tshirt.
I want to go on vacation to Iowa. I have a friend that way and I miss her with all my heart. I also got another ghost hunt this weekend @ the Opera House. We have a book dealio coming to shadow us while we investigate. This is like the 10th time I have investigated this place. We now control all the tours and investigations that happen there and we give the Opera House the profits so that they can update the place and make it look better. It was built back in 1903 but the history of the area tells us there used to be a hotel there that burned down. There was a tunnel that ran under the town, they say it was because of the common belief that Yellow Fever couldn't be spread underground. The whole area has interesting paranormal things going on inside but the main part that is haunted is the basement which is most likely the original basement of the hotel. The whole town is beautiful and they have a little Inn down the road that I am in love with.
Anyway I have to go relax! HUGS!!

Friday, July 17, 2009

Bone Scan and Dates

Got the results from my bone scan it proved that I do indeed have RSD and it also proved that my RSD has spread to my hip.
In other news I am kinda seeing this guy...he is a good friend of mine and he just moved back into town and I am really comfortable with him. I hope all works out but I am taking it slow cause my heart cannot take any disappointment right now.
I am making dinner for him tonight! I am siked! Well off to finish dinner!
HUGS!!

Monday, July 6, 2009

RSD Sucks Eggs lol

So been a while since I wrote so I thought I would update. My RSD has gotten worse since my Stim died over 3 weeks ago. I went and did some stuff with my friend Rob for the 4th but now I can barley walk without the assistance of a walker. My whole leg is flared up bad today and it is really swollen. Makes me wanna rip it off and throw it off a bridge. My friend Rob has really been there for me he took me out in my wheelchair and pushed me around to the parade and drove me to and from. He really makes me smile and he understands me completely. He is my best friend in the world. Happy Belated 4th to everyone btw. Well I am gonna go see if this leg will shut up and let me sleep.....a high school friend of mine names Gordo is coming over to see me tomorrow so i gotta be able to do a little something. Hugs and Pain Free Days to all!!!

Saturday, June 27, 2009

An Open Letter to Our Family & Friends

Many print this out to hand to family members, or put on a bulletin board or on their refrigerator's at home to continual remind our families


Having RSD means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident most people do not know even a little about RSD and of those who think they do, many are actually misinformed.
In the spirit of informing those who wish to understand, these are the things I would like you to understand about me before you judge me:
-Please understand that being in pain doesn't mean that I am not still a human being. I have to spend most of my days in incredible pain and exhaustion and if you visit I probably don't seem like much fun to be with. But, I'm still me stuck inside this body. I still worry about school and work and my family and friends and most of the time I'd still like to hear you talk about yours too.
-Please understand the difference between "happy" and "healthy". When you've got the flu, you probably feel miserable with it, but I've been in pain for years. I can't be miserable all the time and, in fact, I work hard at not being miserable. So if you're talking to me and I sound happy, it means I am happy. That's it......it doesn't mean that I am not in a lot of pain, or extremely tired, or that I am getting better or any of those things. Please don't say "oh, you sound better!" I am not sounding better. I am sounding happy. If you want to comment on that, you're welcome to do so.
-Please understand that being able to stand up for 10 minutes doesn't necessarily mean that I can stand for 20 minutes or an hour. And, just because I managed to stand up for 30 minutes yesterday doesn't mean I can do the same today. With many diseases you're either paralyzed or you can move: with this one it gets more confusing.
-Please repeat the above paragraph substituting "sitting", "walking", "thinking", "being sociable" and so on.....it applies to everything.
That's what RSD does to you.
-Please understand that RSD is variable. Its quite possible (for me its common) that one day I'll be able to walk to the park and back, while the next I'll have trouble getting to the kitchen. Please don't attack me when I'm hurting by saying "but you did it before!" If you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute. If that happens, please do not take it personally.
-Please understand that "getting out and doing things" does not make me feel better, and can often make me seriously worse. Telling me that I need a treadmill, or that I just need to lose (or gain) weight, get this exercise machine, join this gym, or try these classes, may frustrate me to tears and is NOT correct. I am working with my doctor and physical therapist and am already doing the diet and exercise I am supposed to do. Another statement that hurts is "you just need to push yourself more, work harder..."RSD includes nerves and circulation, and our bodies don't repair themselves the way yours do; pushing myself can do far more damage than good and could result in recovery time of days, weeks or months.
-Please understand that RSD may cause secondary depression (wouldn't you get depressed if you were hurting for months and years on end?) but it is NOT created by depression.
-Please understand that if I say I have to sit down/lie down/take pills now, I have to do it RIGHT NOW--it can't be put off or forgotten just because I am out for the day (or whatever). RSD does not forgive.
-Please understand that I don't want you to suggest a cure to me. Its not because I don't appreciate the thought and its not because I don't want to get well. Its because I have had almost every one of my friends suggest one at some point. At first, I tried them all, but then I realized I was making myself sicker, not better. If there were something that cured, or even helped, all people with RSD would know about it. This is not a drug company conspiracy; there is world wide networking (both on and off the Internet) among people with RSD, and if something worked we would KNOW. If, after reading this, you still want to suggest a cure, then do it, but please don't expect me to rush right out and try it. I'll take what you say and discuss it with my doctor.
In many ways I depend on you -- people who are not in pain. I need you to visit me when I am in too much pain to go out. Sometimes I may need you to help me with the shopping or the cooking. I may need you to take me to the doctor or the physical therapist. You're my link to the outside world.

And as much as possible, I NEED YOU TO UNDERSTAND ME!

Sunday, June 21, 2009

Hope is Important!!

So I thought I would do a longer update then usual. I am going up north the Cleveland to see a new Doctor. I am kinda nervous but hopeful that things will work out for the best. A lady I met a week or so ago hired me to do the art for a foundation she is starting. 7 pieces to start off with and more to follow. She is doing a month on RSD because I told her about my story. She thought I was this little kid though. This is like the 15th time this month alone that people thought i was younger then a truly am. Some people say it is a blessing but right now I am kinda upset because I am getting treated like a 2 year old. It kinda stinks and all I wanna do is get treated like an Adult. With all I've gone through in my short 22 years I am a lot more mature then some people my age. I had to learn to take things in stride. I been on twitter a lot lately if you wanna follow me just send me a message @KissaHasRSD . I been talking to on of my friends on there and she has really helped me through a lot lately. She keeps telling me that I def don't wear rose color glasses about my RSD and I tell the truth. I always tried to be truthful about what I am going through. Some people think that is annoying but if my story helps someone else suffering then my jobs done right. Education is so narrowed to just what you lean in school and there is a whole world of information out there. I didn't know what RSD was till I was Diagnosed. Some people don't know about some diseases till it is too late and then it just stinks. But we gotta keep on holding onto Hope! Well I am gonna rest for a while. My stim died this week so I am not getting any relief from my pain.....Hugs to all!!!

Friday, June 19, 2009

Quik Update

I am not doing too good Something is wrong with My Pain Stim. But I am trying to stay positive! I made the following video with My Gran and Kaijen! http://www.take180.com/s/UP/r015r

Wednesday, June 17, 2009

Stupendous News!!!

I got into a really hard to get into Pain clinic in Cleveland!! I went into the hospital a little over a week ago and now I got a Appt. this upcoming week!! Thank goodness for DR. Referrals!!! I had to get a hotel room because I cannot drive that far in one day so I am staying over night then going in the morning then driving home.Not a lot going on. I am starting to walk pretty OK now. I walked 1/4 mile but totally payed for it last night and today. Kinda had a mini melt down. My grandma thinks I am being mean to her but I just cannot do as much as I used to and she is new to the RSD Kissa. I am flustered sometimes but hey I will still be alive tomorrow. Well off to dream land....going swimming tomorrow.

Tuesday, June 16, 2009

Boo Ya!

I am so happy to be fighting RSD! I am so happy to be 1 million times stronger then I was a year ago both physically and mentally. I started babysitting a friend of the families son, Kaijen, he is a sweetheart and he keeps me going. I need to be pushed a little bit but at the same time makes sure i don't do too much. A lot for a 10 year old to do but he does it with ease. We are getting passes to the Y and I will start swimming with him. I was dropped my physical therapy so I most likely will treat this as my PT. I am so blessed by God to be able to look back and see how far I have come. I really got a fire lit under my butt because of my hospital stay. I figured out that the Dr's are not going to help me here so i might just start helping myself. I will beat this RSD! Take that people who say I cannot do it!!! Boo Ya!

Monday, June 15, 2009

Update!

Hello all Here is an Update! I am feeling better this week....I start Babysitting Kajien tomorrow we are gonna go to the Y and Join up so we may go swimming. He showed up with his mom tonight and we played Wii for a while....totally blew him out of the water playing Bowling,we tied at Baseball,and he totally beat me at Tennis. I am feeling a lot better. Anyway I am off to see True Blood.

Thursday, June 11, 2009

I went into the Hospital this week. I've been really bad pain wise for the last month. The Pain spread from mid-calf to Mid-thigh. Finally Monday Night my mom took me to the ER and they took me in and admitted me after 3 rounds of diloted. I went back to my room and I fell asleep. First thing in the morning the nurse came and she asked me how I was, I said I was in horrid pain and that the pain was in my left leg. She proceeded to grab my bad leg. If you know anything bout RSD you know that I wanted to cry/die/rip her eyes from her head, it hurt so bad. She asked "Does that hurt?" I almost wanted to yell at her but I was dying to bad to answer. They pretty much doped me up. The Dr's just kept saying to get my Pain Stimulator Adjusted. One Rude Dr told me that they don't treat chronic pain they only treat acute pain and post op pain. I Had a couple hyperventilation over that conversation right there. I stayed another night and they said the same thing in the morning. They refused to talk to my mother and I was totally drugged up and I couldn't think. So mom got me out of there and took me to my Dr. They adjusted my Pain Stimulator but it didn't help so I am at home. They handed me prescriptions for Tramadol and some more Lyrica. Right now I am home and not able to do a lot. So messages and the like are really appreciated!

Wednesday, June 3, 2009

This site is Awesome!

As the pain gets worse it is great to know there are others out there who are behind me http://www.shareandmakeaware.org/

Tuesday, June 2, 2009

My Life on CRaPS


I am starting to think my body has a mind of it's own. I always had soooo many dreams as a kid. When I was in 7th grade a week after my birthday I was walking down the hall and started feeling weird and before I knew it I was on the ground being shook by my math teacher. I had fainted. The called a squad but when they Came they said all seemed fine. This went on and on for months. I would faint 2 sometimes 3 times a day and sometimes they wouldn't call the squad. My fellow students and worst of all the adults and staff at my middle school started saying I was faking it. They thought that I was just a lost little girl trying to get a lot of attention. I even went blind one day and the nurse told me to walk around the office to probe that i was really blind. I walked into a sharp edged table and put a gash in my knee. She still didn't believe me.This went on for 7 months,no help nothing but judgments. I finally went to a neurologist who asked my mom if she knew my pituitary gland was being squished by fluid. He told us to go to a specialist in the matter and she finally told me what I had. Pseudo Tumor Ceribri which is a build up of fluid in the spinal Column and the brain. In my case the fluid was trying to get out and it was trying to go out my optic nerves. I ended up losing my side vision (peripheral) and the pressure on my pituitary stunted my growth and messed with my hormones. I finally got that under control, there isn't a cure for that either but there is a high rate of remission. I went in and out 2 times finally in for a while. Flash forward to 2008 April. I was working at Build a bear and I had just thought about quitting because I went out and got my nose pierced and they threatened my job if i didn't take it out. I almost wished I had walked away but hey....anyways. I was taking out the trash at work and my coworker was behind me and I was pulling the 1/2 ton metal trash kart down a small wheelchair ramp. I found out after that the kart was broken and I had been trained to pull a broken kart....big no no. It went rouge and ran into the back of my left heel....I blacked out and it felt like it hit a nerve and I almost threw up. I hobbled back after throwing the trash out.....blood in my shoe wasn't customer friendly so the let me go home but I went to Urgent Kare. They said i sprained it and might got something else and to follow up with a different Dr. So I did. Went to a mouse of a Dr. he put me in a walking boot. My foot started hurting....more then I would think a torn ligament and a sprain would be. I kept telling the Dr. but he said it was normal. We went back after 14 weeks of being in this boot. He thought I was just being a big baby. He told me that I needed to get out of the boot and into a brace.....he went to look at the swelling in my foot and he barely touched it and i flinched and pulled away. He finally said.....it might be RSD...but nothing was really said after. I stayed pretty laid up for about 5 months. No one said RSD again to me and I thought nothing of it. We did different tests and they all said nothing. I wasn't getting a paycheck so I was stuck at home with my parents. About the 7th month he finally said that I really had RSD. I was so pissed and frustrated by this time that I wanted to spit. My mom talked to a Dr. friend of hers and he pointed us in the direction of the best RSD Dr. in Ohio and he was 10 miles from my House. Dr. Deshpande worked real hard with me. We tried a lot of different things. He did a Sympthetic Nerve Block and did different narcotics. I ended up in the hospital after that with double the pain now. Nothing really helped. So about December he finally said that I should get a Lumbar Stimulator. It is a machine that sends out electronic impulses in hopes that those pulses will block the pain getting to my brain.....It works to a degree but I still got about 50 to 80% pain most days. I got it in January and now it is June and they are talking bout taking it out and starting at square one. My physical therpy dropped me till my dr. figures out what the future will bring. I am praying it will be a lot brighter then it is today. I am one of the lucky few to find out RSD in its first year.

Sunday, May 24, 2009

Hey all

Things are really rough right now. Mom went into the hospital. She has 3 ribs broken. It is really rough.....my leg has been bad. I lost a few of my friends the last few weeks because of my RSD. So they say. I am tired of life and thinking of staying away from other people for a while.

Wednesday, May 20, 2009

You never quite know what you have until it is gone.
It was yet another dull day in the small town of Eve, Ohio. I walked down the dusty road to school, wondering how I couldn’t bypass the headmistress outside the gate and sneak off into the woods to entertain my time daydreaming. I knew thought if my mother heard that I skipped school again, that I would never hear the end of it.
“Daphenie,” I heard screamed in my general direction before I could even make a feeble attempt to go into the woods. “Drats,” I thought to myself as I gathered all the strength not to charge head-on into the woods. It was too late, Headmistress Cole already saw me, if I ran now I would be disowned or sent to government school. I couldn’t think which was worse; I was weighing the latter as the worst when I heard my name yelled again. I walked slowly towards the gate, keeping my mouth pressed together in attempt to not say anything stupid as I passed through the gate.
I sat down at my desk, my other classmates staring at me. Why was I the only rebel in the whole state of Ohio? Hadn’t any of my peers wanted to just run away, not listen to what the teacher taught us? Apparently not since the stares that my peers gave turned to scoffs and then to disappointment as our teacher Ms. Windsor snapped everyone to attention and started class.
“Open your text books to page 184 and follow along as I read,” she said in her low gruff voice. I always imagined Ms. Windsor would be a really good dungeon torturer, no prisoner would be safe from her wrath. Also if the torture didn’t work she could bore your brain into a pulpy mush, maybe which would be a better, to die of boredom then die or the hands of someone else. I tried to pry my mind from morbid thoughts and concentrate on the lesson in front of me. Today’s lesson was on how the great war of Tyranny was fought.
The great war of Tyranny was a war against anything and everything that went against the Book. This Book was passed down from father to son till it became the basis’ of our country today. It caused many a war, because its content isn’t the same for all. As my grandmother used to tell me that the contents of the Book are translated differently to different people. I always wondered about this. Ms. Windsor’s voice broke through my daydreaming. She was now talking about the day they outlawed color. Now mind you I have never seen color before but I was always told that it wasn’t a thing to be played with. It corrupted the mind and damned the soul for all of eternity. There were armies of people who fought to keep color legal, but the government was too big and soon overtook them. Art museums were torn down, theatres burned; whole sections of towns and their population came up missing almost overnight. The government said that they were threatening the wholesomeness of our fair country. People who stood by the idea of color soon became a myth, kind of like Unicorns. Ms. Windsor insists that the government just asked the people to move to a different place, but I don’t know.
I must of fallen asleep or was far gone in my daydreaming because before I knew it the last school bell rang. Had I gone through school like a zombie all day?
I pushed all of my stuff into my backpack and started down the corridor to the front gate. The Headmistress stared me down as I walked out of the gate. The old bird needed a new hobby other than making sure I wasn’t making trouble. I walked down the lane the colorless decaying trees around me put a spark of foreboding in the air. I walked past and the trees seemed to have shadows moving among them. I quickened my pace just a bit, afraid of what I might find if I stayed in this area too long.

I was almost to the bridge when I saw something in my path. It was a piece of fabric but its tone was something I had never seen before. It was almost Angelic in quality and hopeful in style. It made my eyes dance as I looked down at it. It was mesmerizing the greatest thing, seriously since I first was born. I bent down to grab the fabric. The fabric was inches from my grasp when I heard a rumble from far behind me. I grabbed the piece of fabric quickly and stuffed it tight into my grip, and turned around expecting to see the headmistress had followed me to give me a scolding again. Instead in the distance there was a dark man. Angry and brooding he seemed to double in size as he came toward me. I froze not really knowing what to do. He came closer and closer and yet my body was refusing to move. Everything inside of me was yelling “Move!” but my body had gone deaf at that time. I closed my eyes praying this was only one of my daydreams. I was about to open them to prove that it was just a dream when a small firm hand grabbed my arm pulling me in the opposite direction then the man. The grab was so startling that it caused me to drop the cloth from my grip and my gaze centered on who grabbed me. A girl, who had to be a year or two older than me was motioning for me to follow her. Not just follow her to run, but why? I ran a dozen feet or so towards her then looked back. The man was closer now, I could see clearly now that he was carrying what looked like flashlight. It would have looked like a normal flashlight but this one was emitting a dark mist. The mist made the man even more terrifying as he took it out and shone the light onto the fabric far in front of me and the mist seeped out and overcame the cloth causing it to disappear before my very eyes. The girl tugged at me again, but before I ran too far I noticed the man’s whole body was emitting the mist. The pit of my stomach turned and I snapped around and ran almost passing the girl. I ran until my legs hurt and I ran some more too afraid to turn around to find the Dark Man still following me, his dark mist ready to engulf me no questions asked.

I was running so fast and so far that I didn’t notice where I was going. Soon the scenery became odd and not familiar. The girl was a stride or two in front of me but I could not seem to take my eyes off the way is shined and bounced in the sunlight. Her hair was something I had not seen before. Like the fabric, her hair seemed to be glowing as if it was on fire. Yet it had a different quality, something that our fire didn’t have. The light that bounced off her hair was exactly like the embers and sparks that would leap off of the wood in my hearth at home.

I followed her still mesmerized by her strands that I didn’t notice she had stopped. I looked around; there wasn’t anything out of the ordinary. The dull boring scenery was almost like the forest by school. The more I stared at the scenery around me the more I noticed something was a little off. Unlike the trees the girl and I had been running through the trees directly in front of us were not moving. The girl calmly walked forward 5 large strides and knocked 3 times on a tree trunk. The sound her knock made was hollow and not what I expected to here coming from the huge tree trunk. The ground below us shook slightly and from one side of the tree trunk a door opened and the girl stepped and she ushered for me to follow her. The inside of the trunk was hollow and there was a spiral stair case. The girl was a ways ahead of me before I stepped foot into the trunk. As I followed down the mood of my surroundings shifted from dull and blank to something else that I couldn’t quite describe in words. The girl stood at the bottom of the stairs with the widest grin and her hands on her hips. Her smile was blinding but I didn’t mind she had just saved my life and now I was beginning to believe I was in heaven. There were rows and rows of tents, unlike I had ever seen, some glowed, some seemed to shine, and all of them were a sight to be seen. The girl pulled me forward and a man completely dressed from head to toe in the fabric from the road came boldly out of the tent directly in front of us..

Sunday, May 10, 2009

Pain Pain Go Away!

I guess my RSD knows that it is RSD Awareness month. Reflex sympathetic dystrophy (RSD), also called complex regional pain syndrome (CRPS), is a chronic, painful, and progressive neurological condition that affects the skin, muscles, joints, and bones. The syndrome usually develops in an injured limb, such as a broken leg, or following surgery. However, many cases of RSD involve only a minor injury, such as a sprain. And in some cases, no precipitating event can be identified. RSD/CRPS is characterized by various degrees of burning pain, excessive sweating, swelling, and sensitivity to touch. Pain may begin in one area or limb and then spread to other limbs. In some cases, symptoms of RSD/CRPS diminish for a period of time and then reappear with a new injury. It is estimated that as many as 8 million suffer from RSD in the USA alone, that is 8 million people without a cure. Find a cure. Give Hope!! Today is still an awful pain day. Both my leg and my surgery site is killing me. I am frustrated with my RSD it just doesn't quit, it doesn't sleep, and when it comes to me sleeping. HA! That is funny....no sleep lately. The Parents and I are planning to go away to get my mind off pain. No where special just middle of no where. We are taking the dogs too! Woohoo my pup is really happy this will be a first for her. Oh I only imagine how dirty she will get. lol Yea idk when we are going though but things are looking good! I will put up pictures, the dogs are getting pictures taken while we are down there. Well I am gonna head out and try to relax. Hugs!!!

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