Sunday, December 6, 2009


So We had a Formal Dance at Church this past Friday and all of my gal pals went as each others date. I went and got my hair done early in the day and then all of us girls....well me Tara and Darc went and got Tara an outfit for the dance then got home late and got ready fast then went picked up our friend Amy and went to eat @ Panera Bread and we had a blast!
We then got to the Dance a little late but had a blast and I got a little of dancing in before having to sit the rest of the nite in pain. We sat around and talked and just had a blast I took a video of all the craziness and its funny!
http://www.youtube.com/watch?v=Iisdhyu0mCo
We had an awesome time and then after we tired of the dance we went back to Darc's and we watched "Sister's Keeper."
Then on Saturday me and my boyfriend Joey went with his aunt and uncle to a Nativity. It was awesome! But now because I was out in the cold my RSD leg hates me. But yea it was a lot of fun! I loved it!
Anyway I have updated the RSD/CRPS Doesn't Own Me Website and its awesome!!!!
You should check it out!
www.rsdcrpsdoesntownme.com
Pictures:
Top- Is Me!
Middle- Amy and Me
Bottom-Joey and Me

Friday, October 2, 2009

New Meds.

So this monday I had a appointment with my pain management doctor, Dr. Deshpande, and it was a big appointment.
We talked about my pain and how bad it really was. He decided to put me on a new pain medicine Embeda, which is pretty much time released Morphine. Then we decided for my breakthrough pain and/or flare ups that I should take my Lortab (also known as Vicodin.)Also we talked about how I haven't been able to sleep so he also put me on Lunesta.So as of Now I am taking Lunesta 3mg @ night, Lorab 10/500mg as needed, and Embeda 20-0.8mg 2xday. I hate having to take so much medicine but I got to take them so that I can function.
I need to get to my general practitioner soon because there are some other things wrong with my body that might be a side effect of the amount of meds I have taken the last 2 years.
Also I am seeing if my pain doctor will approve me getting a scooter or a wheelchair because it is hard for me to get around without extra help.
My pain has spread to up to my left side. So my whole left leg is also taken by the RSD pain. It is frustrating but I am trying to live the best I can.
I started a new fan club called RSD/CRPS Doesn't Own Me on Facebook
> we have over 200 fans who have or know someone who has RSD. I am trying to spread joy and happiness and help all of us who have chronic pain get through this with a smile.

Anyway I am off to eat lunch.

HUGS!

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